Our Library
BSSG is purely a support organisation.
Here are some of the ways our members have contributed to wider knowledge of the effects of stroke.
Our stories
A Stroke Survivor and Carer's perspective on stroke with Gordon White, Stroke Survivor and Vivienne Harkness OAM, President and Former Carer
Minimising the risk factors for stroke, Jenny Cheng, Stroke Survivor and Founder
Hand therapy with Ian Wakefield, Stroke Survivor
Relearning to walk with Mary Hiou, Stroke Survivor
Getting ready with Krystyna Thompson, Stroke Survivor
Books
Finding Yourself After Stroke (includes one of our members’ Shannon Nelson's stroke story).
Finding Yourself After Stroke is a world-first compilation, featuring the stories of 26 young stroke survivors, whose lives have been suddenly and unexpectedly impacted by stroke.
The authors within candidly describe the moments that led up to their stroke event, diagnosis, rehabilitation, and how their life-experience and perception has changed post-stroke.
There are many physical and “hidden” challenges to navigate after stroke, such as: Aphasia, Dysphagia, Emotional Dysregulation, Executive Functioning, Hemiplegia, Identity Loss, Locked-In Syndrome, Nerve Damage, Neuro-fatigue, Pain, Relationships, Visual Impairment and much more…
Not to Yield: A diary of a stroke. A story of Hope, by Peter Hocking
The diary turned out a great idea and one I can recommend. Stroke recovery tends to be frustratingly slow, so it is often hard to appreciate progress. To have a record of how bad things were helped me to benchmark how far I had progressed – more often than not, further than I realised.
Booklets and News Articles
“A loved one has has a stroke“ is a guide for family and friends wishing to support stroke survivors and their carers. The booklet was developed by BSSG from Focus Group discussions with our stroke survivors and carers.
Young stroke survivors warn age is no guarantee of health, by Sam Geddes
Other Information
There are other organisations that can assist stroke survivors and their carers.
These include:
Stroke Foundation
The Stroke Foundation partners with the community to prevent stroke, save lives and enhance recovery. The Stroke Foundation does this through raising awareness, facilitating research and supporting stroke survivors.
Carers Victoria is the state-wide voice for family carers, representing and providing supports to carers in Victoria.